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Illinois Precision Medicine Consortium

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University of Chicago logo
University of Illinois Health logo
NorthShore logo
Northwestern Medicine logo
Rush Medical Center logo

What is the Illinois Precision Medicine Consortium?

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People of Chicagoland, we need your help. We are working with the National Institutes of Health (NIH) and the All of Us Research Program to help speed up health research.

All of Us is looking for people in the Greater Chicago area and its suburbs to share their health data with our approved researchers. Members of the Illinois Precision Medicine Consortium include Northwestern Medicine, University of Illinois Chicago, University of Chicago, Rush University Medical Center, and NorthShore University HealthSystem.

Our members have been a trusted part of the Chicagoland medical community for more than 100 years. By working together, we may help change the future of health.

LEARN MORE ABOUT THE PROGRAM

How to Join

You can sign up using this website or call to make an appointment. If you do not finish signing up online, you can continue the process in-person; whichever is most convenient for you.

Get in Touch

Please contact us to learn more about participating in the program.

University of Illinois Chicago (312) 996-2778
Northwestern Memorial Hospital (Galter) (312) 695-6077
Northwestern Medicine Grayslake Outpatient Center (312) 695-6077
Northwestern Medicine Delnor Hospital (630) 938-9168
University of Chicago Medical Center (773) 795-4767
Rush University Medical Center (866) 761-7806
Northshore Evanston Hospital (224) 364-7553
Northshore Galter LifeCenter (224) 364-7553
Cook County Health (312) 864-3645
Frequently Asked Questions
What will you do to protect my privacy?

Your privacy is very important, and we will take great care to protect it if you join. Here are a few of the steps we will take:

  • Information we collect will be stored on protected computers. We will limit and keep track of who sees the information.
  • We will remove your name and other direct identifiers (like your Social Security number) from your information and replace them with a code. There is a master list linking codes to names. This list is kept secure, and very few people have access to it.
  • To work with your health information, researchers must promise not to try to find out who you are.
  • We will tell you if there is a data breach.
  • The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight legal demands (such as a court order) to give out information that could identify you.

Still, loss of privacy is a risk of taking part in the All of Us Research Program. Even without your name, there is a chance someone could figure out who you are. Your information could be misused. We believe the chance of this is very small, but it is not zero.

Why should I join the All of Us Research Program?

If you join, you will be contributing to research that may improve health for everyone and for future generations. Our goal is to understand how different factors together affect health and speed up research to develop new and tailored treatments. Here are some examples of what researchers might be able to discover from their research:

  • Better tests to see if people are sick or are at risk of getting sick.
  • Better mobile apps to encourage healthy habits.
  • Better information about which or how much of a medicine is right for each person.

Also, you will be able to see your All of Us information, which might be interesting to you. It may help you learn about your health. Adult participants may also learn about their DNA, if they choose to. Participants can share any information they receive from All of Us with their doctor, if they choose.

What is precision medicine?

Precision medicine is health care that is based on you as an individual. It takes into account factors like where you live, what you do, your genes, and your family health history. The goal of precision medicine is to be able to tell people the best ways to stay healthy.

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Our FAQ library has the answers to over 60 common questions.

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